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RECENT POSTS

Rob Long of Chester Springs, PA is the Executive Director of Uplifting Athletes Inc. which inspires the rare disease community with hope through the power of sport.

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Aviva Rosenberg of Pittsburgh, PA is the Co-Founder and Co-President of the Gaucher Community Alliance which supports patients with Gaucher disease and their families through peer-to-peer support and education, advocacy, patient and family resources, and networking.

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Caryl Harris of New Hope, PA is the Executive Director of Avery’s Hope which raises money and awareness for rare pediatric GI patient families assisting with out-of-pocket and insurance denied expenses.

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