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HARRISBURG – In honor of National Rare Disease Day on Feb. 28, Reps. Marcy Toepel (R-Montgomery) and Mark Longietti (D-Mercer), as well as Sens. Judy Ward (R-Blair/Cumberland/Franklin/Fulton/Huntingdon) and John Blake (D-Lackawanna/Luzerne/Monroe) will serve as co-chairs for Pennsylvania’s Rare Disease Caucus for the 2019-20 Legislative Session. News headings Toepel, Longietti, Ward and Blake will work with…
Harrisburg, PA – Governor Tom Wolf today signed legislation to establish a Rare Disease Advisory Council in Pennsylvania. The law is a step forward to help more than 1.2 million Pennsylvanians suffering from a rare disease. Act 14, House Bill 239, was introduced by Representative Marcy Toepel, and establishes the Rare Disease Advisory Council, consisting…
PITTSBURGH, Penn., May 10, 2017—Today, Pennsylvania’s House of Representatives voted unanimously to pass HB 239, which would establish a Rare Disease Advisory Council and provide Pennsylvania’s 1.2 million rare disease patients with a voice in the state government. The bill now moves on to the Senate for consideration. “Helping the rare disease community starts with…