OUR MISSION

Improving lives for Pennsylvanians who live with a rare disease

The PA council for rare diseases is a resource for patients, physicians, and families to help those living with a rare disease.

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WHO WE ARE

To our friends and neighbors, members of our commonwealth who struggle with a rare disease and to family members who support their loved ones, taking joy where they can find it and tackling obstacles when they are encountered, we dedicate our efforts.

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WHAT WE DO

Resources for an underrepresented part of the medical community in PA

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DATA

1.2 Million Pennsylvanians live with a rare disease.

There are

0

Recognized Rare Diseases

0%

of rare diseases affect children
There are around

0 million

Americans living with a rare disease

0%

of rare diseases have genetic origins
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