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Aviva Rosenberg of Pittsburgh, PA is the Co-Founder and Co-President of the Gaucher Community Alliance which supports patients with Gaucher disease and their families through peer-to-peer support and education, advocacy, patient and family resources, and networking.
Caryl Harris of New Hope, PA is the Executive Director of Avery’s Hope which raises money and awareness for rare pediatric GI patient families assisting with out-of-pocket and insurance denied expenses.