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NIH Genetic and Rare Diseases Information Center (GARD)

Pennsylvania Rare Disease Needs Assessment Survey

PARDAC has created this survey to learn more about the needs of individuals, families and loved ones affected by rare diseases in the Commonwealth of Pennsylvania. Survey results will help our efforts to improve the quality of life of all those affected by rare diseases in Pennsylvania.  This survey is intended for persons with a rare disease who reside in Pennsylvania and should be completed only once for each person with a rare disease.

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Improving the lives of Pennsylvanians
who live with a rare disease

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