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JULY 7, 2017

The Rare Disease Advisory Council Act, Act 14

The Rare Disease Advisory Council Act, Act 14, was enacted on July 7, 2017 by Pennsylvania Governor Tom Wolf. The Secretary of Health, Rachel L. Levine, M.D, designated Bureau Director Tomas J. Aguilar from the Department of Health as the Chair.

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PITTSBURGH, Penn., May 10, 2017—Today, Pennsylvania’s House of Representatives voted unanimously to pass HB 239, which would establish a Rare Disease Advisory Council and provide Pennsylvania’s 1.2 million rare disease patients with a voice in the state government.  The bill now moves on to the Senate for consideration. “Helping the rare disease community starts with…

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